The Summary Care Record


This non-commercial website was written by Dr Neil Bhatia, a GP and Caldicott Guardian / Information Governance lead in Hampshire.

Follow @docneilb


This website aims to provide information to everyone about The Summary Care Record (SCR) so that you can make an informed decision about opting-out or not.

This site describes:

The official Summary Care Records website is here.

You can find out about all of the NHS Databases, and other NHS data sharing schemes, via www.nhsdatasharing.info


When it come to how your GP-held medical information is used:


Primary uses are uses of data for the main purpose for which they were originally collected directly from the individuals concerned.

For your GP record, this means making that information available, to healthcare professionals that you are seeing, for your direct medical care.

You can download a simple factsheet about data sharing between healthcare professionals here.

You have the right to opt-out of allowing your medical record to be shared, or be directly accessible, for primary purposes - for your direct medical care - beyond your GP surgery, if you so wish.

This may limit the opportunity for certain health professionals (other than those within your GP surgery) to directly access aspects of your electronic GP record in a particular way.

However, it in no way limits all of the other and many ways that your medical information can be made available to those who require it.

That information can be made available by you - the patient - directly, or by temporarily giving the health professional secure online access to your medical record.

That information can, is, and always will be made available to those who require it by your GP, whether directly, by phone, fax, text, letter, email, e-referral or e-prescription.

An example of preventing a primary use of your GP record would be opting out of the Summary Care Record.

You can opt back in and allow all the primary use schemes to extract and upload, or stream your data, or you can opt back into each scheme individually, as you prefer.


Secondary uses are uses of existing data for purposes other than those for which they were originally obtained.

For your GP record, this means making that information available, to anyone (not just within the NHS), for purposes other than providing your direct medical care.

Examples of secondary uses include, research, audit, healthcare planning, commercial and even political uses.

You can download a simple factsheet about the Type 1 secondary uses opt-out here.

You can download a simple factsheet about the Type 2 secondary uses opt-out here.


If you want to express a Type 1 and/or a Type 2 objection, then do so now.

The Government is currently consulting on consent and opt-outs, and it is highly likely that the right to express a Type 1 opt-#out (at least, as it applies to the extraction and uploading of information from your medical record to the HSCIC) will be withdrawn from a certain date.

If you haven't opted out by that date then you may not be able to do so anymore.


You have the right to opt-out of allowing your medical information to be used for secondary purposes - in ways unrelated to your direct medical care - if you so wish.

Not allowing secondary uses of your GP record - which should prohibit risk stratification, the national audits and GPES extractions - will in no way affect the medical care that you receive, anywhere in the NHS or privately.

Opting out of secondary uses of your GP record will not prevent medical researchers accessing your information - they just have to ask for your explicit permission first.

An example of prohibiting a secondary use of your GP record would be opting out of one or more of the national audits.

You can opt back in to secondary uses of your GP record at any time in the future. You can opt back in and allow all the secondary use schemes to extract, upload and process your data, or you can opt back into each scheme individually, as you prefer.



The Summary Care Record is an example of a primary use of your GP medical record.

"There are no secondary uses of Summary Care Record clinical data"

HSCIC, FOI response




Index to sections


  1. In a nutshell
  2. What has happened to my GP record ?
  3. Can GPs refuse to upload ?
  4. Who is the data controller for the SCR ?
  5. A core Summary Care Record
  6. An enriched Summary Care Record
  7. What are my choices ?
  8. What about my childrens' records ?
  9. Can I get my Summary Care Record deleted ?
  10. Access to my Summary Care Record
  11. The Summary Care Record and other GP services
  12. The Summary Care Record and secondary uses of your GP record
  13. The Summary Care Record and Pharmacy Access
  14. The Summary Care Record and The Hampshire Health Record
  15. The Summary Care Record and EMIS Web data streaming
  16. Opting out of The Summary Care Record
  17. Other ways by which you can share your medical information with healthcare professionals outside of your GP surgery
  18. Contact me



Summary Care Records in a nutshell....



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Summary Care Records - what has happened to my GP record ?


A new central NHS computer system has been gradually introducedacross England called the Summary Care Record (often referred to as the "NHS Database"). The Summary Care Record is meant to assist healthcare professionals when you see them for direct medical care.

Medical data from your GP records is being extracted and uploaded, on a continuous basis, to a central database run by the HSCIC. The data will then be made available to those who have access to the Summary Care Record by means of an NHS Smartcard.

Your data is uploaded by default, unless you actively object – an "opt-out" mechanism.

That is, if you do and say nothing, your data will be uploaded, and will continue to be uploaded.

The HSCIC believes that everyone should be assumed to be happy to have their information uploaded and be required to formally object if not.

The Summary Care Record is not an "emergency care summary". Your uploaded information can and will be accessible not just to emergency doctors and nurses, not just in Accident and Emergency departments or GP out of hours centres, and not just when your GP surgery is closed. It is used, and will be further used, for routine medical matters.


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Can GP surgeries refuse to upload records to the Summary Care Record without their patients' explicit consent ?


NO.

The HSCIC has mandated all GP surgeries to upload Summary Care Records, under an opt-out system.


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Who will be the data controller for my uploaded record ?


The data extracted for the Summary Care Record will be stored on HSCIC national servers and not on GP systems.

The HSCIC is the data controller for all data stored in Summary Care Records.

As the data controller, the HSCIC alone decides the purposes for which your uploaded data is, or will be, processed and the way in which your uploaded data is, or will be, processed. The HSCIC alone decides who has access to your records, and whether or not to seek your consent for any such release.

Whilst your GP controls your medical records as held by your surgery, your GP is not the data controller for any records uploaded and stored in your Summary Care Record.

Your GP will not be able to:


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A Core Summary Care Record


At first, the data uploaded from your GP records will comprise of "core" data, and this phase is known as the initial summary. This will occur if you have not specifically opted-out.

If you have opted-out, no clinical information whatsoever is uploaded and a completely blank record is created instead.

Demographic data (your name, address, DOB, telephone number, GP details etc) has already been uploaded.

"Core" data consists of:

Core data is the minimum data that will be uploaded to the Summary Care Record.
More data can and will be uploaded to it if you should want - or if you're not careful.

The core data will be updated in your Summary Care Record automatically as your GP prescribes further medication, or if you develop allergies or adverse reactions to medicines. It is then known as your "GP summary".

You cannot stop a record of the medication that your GP prescribes from being automatically uploaded to the Summary Care Record, even if this is medication clearly used to treat sensitive or embarrassing conditions, and nor can your GP stop this upload. It is often easy to deduce a patient's diagnosis from the medication being used to treat him or her.


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An enriched Summary Care Record


The Summary Care Record was never - ever - going to be just a "summary".

If you give your consent, your SCR can have additional information automatically added to it - a process known as "enrichment" or "enhancement".

Additional (or "supplementary") data from your GP record will then be uploaded to the Summary Care Record, automatically and repeatedly, resulting in an enriched SCR.


Some information can be added with the agreement of both you and your GP.

Some information won't be uploaded, for example details about gender issues, IVF and assisted conception, STIs, and terminations of pregnancy.

But potentially vast amounts of information from your medical record will be added should you agree to an enriched SCR.

Some of the information automatically uploaded will be sensitive, and you may not be happy for it to be visible on your SCR.


The overwhelming majority of additional information added to an enriched SCR will take place automatically and invisibly, by your GP's surgery software system. Only a minority of information will be added following explicit agreement between you and your GP.



If you are thinking of allowing your SCR to be enriched (perhaps your GP has suggested this to you), then please do read this factsheet for patients first.


If you are a GP using EMIS Web, and considering offering enriched SCRs to your patients, then you might find this factsheet for GPs useful.

GPs running other software systems, such as INPS Vision and SystmOne, may also find it useful, as the underlying principles are the same.



The following information about enriched SCRs refers to GP surgeries running EMIS Web software. If your surgery runs SystmOne, further information can be found here, and if your GP surgery runs INPS Vision, further information can be found here.

When your SCR is set to enriched, information is automatically uploaded in addition to the core information of medications, allergies and adverse reactions, and will include:

The amount of potential information automatically uploaded as soon as you give consent is vast.

Look at this document for a list of such items, otherwise known as the SCR Inclusion Dataset.

The information added to the SCR will include free text associated with that item.


Will I be asked for my permission each time additional information about me is to be uploaded to my enriched Summary Care Record?

NO.

The explicit consent given by you to have an enriched SCR will be taken as enduring (permanent) consent for continuously and automatically uploading additional information.

Information and free text, including significant diagnoses, will be automatically uploaded to your enriched SCR.

You might be asked for your permission before certain items are uploaded - but it is your GP's decision as to whether your explicit permission is sought on each occasion.


Can I prevent particular items about me, as defined in the SCR Inclusion Dataset, from being uploaded to my enriched Summary Care Record?

NO.

The information will be automatically uploaded - there is no way to stop it, neither by you nor by your GP.

Your GP can restrict some items (for examples significant diagnoses) from appearing in your enriched SCR - but only by amending your GP medical record. And your GP may not be happy to do that.


Can I get items about me, as defined in the SCR Inclusion Dataset, deleted from my enriched Summary Care Record?

NO.

Once uploaded, it is not possible to remove automatically included information (as defined by the SCR Inclusion Dataset) from the SCR (without reverting to a core SCR).


Be very careful when agreeing to an enriched SCR. Know what information you are allowing about yourself to be uploaded and made available to others.

Please do read this factsheet for patients first.

Your GP can show you what your enriched SCR looks like, at any time. You just have to ask.

You can change your mind at any time and ask for your SCR to revert back to a core SCR, or you can opt-out completely.

Here is an example of a SCR with additional information.


How do I control enrichment of my Summary Care Record ?

There is a setting (or flag) on your medical record that controls what data, if any, is stored within a given SCR. This is known as the National Summary Preference, or SCR Preference flag.

The flag can be set in a number of ways. It can be set directly by your GP (using the existing surgery software) if your surgery is enabled to do so, or it can be set by your GP adding a specific read code (or electronic "flag") to your GP-held electronic record.


The default setting is implied consent for a core SCR.

The SCR Preference flag is set as Implied consent for medication, allergies and adverse reactions only

This is the setting that will be set if you neither opt-out nor opt-in.

Whilst this setting remains in force, only a core GP summary will be uploaded and your SCR cannot be enriched by your GP.

If you say or do nothing as regards opting out of the SCR then your preference flag should remain on this setting. It is the assumption made if you do not opt-out.


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What are my choices ?


You have three choices.


No Summary Care Record whatsoever

If you do not want to have data extracted from your GP record, and uploaded to a Summary Care Record, then you need to opt-out.

Your GP will then :

Whilst this setting remains in force, no SCR will be created for you.


A Core Summary Care Record

If you want a SCR, and want your SCR to remain as the default, that is core data only, and not enriched with further data from your GP record, then you need to tell your GP.

Your GP will then :

Whilst this setting remains in force, only a core GP summary will be uploaded and your SCR cannot be enriched by your GP.


A Summary Care Record enriched with additional information

If you want your SCR to be enriched with further data from your GP record, then you need to tell your GP.

Your GP will then :


The choice is yours - take control of your medical data if you choose to have a Summary Care Record.

Make sure your GP knows what type of Summary Care Record you want. Do not leave it to chance.

Be aware of the consequences of allowing an enriched SCR (a Summary Care Record with additional information).


Can I change from a core SCR to an enriched one ?

YES.

It is easy to make your basic (core) SCR into an enriched one. Just ask your GP.

Your GP will simply Change your preference setting to Express consent for medication, allergies and adverse reactions, AND additional information


Can I change from an enriched SCR to a core one ?

YES.

It is easy to revert your enriched SCR back to a basic (core) one.

Just ask your GP to set your preference flag back to Express consent for medication, allergies and adverse reactions only


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What about my children's records ?


The Department of Health is uploading everyone's medical records, no matter how young or old you are.

Your children's medical records will be uploaded too unless you opt them out.

Children under the age of 16 years old will not be written to about the Summary Care Record before their records are uploaded; it will be up to their parents or guardians to decide whether to discuss it with them or not.

The uploaded data may refer to confidential data which the child provided to their GP perfectly legitimately without parental knowledge.

When your children reach their 16th birthdays, they will not be automatically written to about the Summary Care Record and their uploaded data.

But when your children are old enough to understand and make a decision for themselves about the storage of their data in his way, they will not be able to get those records completely deleted should they want.

Do I need my GP's permission before oping-out my children ?

NO.

Absolutely not.

You do not need to see, discuss with or seek the permission of your GP (or anyone else for that matter) before opting your children out of the Summary Care Record.

The decision to opt-out your children (or opt-in to it) is yours to make, after discussion with your children as appropriate.

In exceptional circumstances, your GP might contact you, as a parent/guardian, to discuss whether opting-out is in the child's best interests. But (in my opinion) this would be extremely rare.

If your child's medical history was so complex, serious or life-threatening then almost certainly other methods of making your child's medical information available to others will already have been considered.

If you are uncertain about opting your children in to, or out of the Summary Care Record then you are welcome to discuss it with your GP. But you are under no obligation to.

New babies will automatically get a Summary Care Record when they register at the GP practice.

You will need to opt-out your newborn if you do not want them to have Summary Care Record.


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Can I get my uploaded data deleted from the Summary Care Record ?


NO.

Once your medical data has been uploaded to the Summary Care Record, it will be extremely difficult, if not impossible, to get your data completely deleted.

If you decide you no longer want your medical records on this database, or if you discover that your records have been uploaded without your knowledge or your understanding or your consent, you will find it virtually impossible to get your data deleted. Your "visible" record can be blanked out or masked, but your medical records - and your childrens' records - will still be stored intact and indefinitely on the Summary Care Record database.

If your records are "accidentally" uploaded, your GP will not be able to get them deleted for you. Your GP will not be able to put things right.

When your children are old enough to understand about the Summary Care Record, they will not be able to get their uploaded data deleted if they want.

If your Summary Care Record has ever been accessed by a health professional (GP, Nurse, A&E doctor, Medical Student, Pharmacist, Health care Assistant, Phelbotomist, Optician, Dentist etc. etc.), or "should have been accessed" then you cannot get your data deleted, only "masked".

If you present to A&E and you are asked if your SCR can be looked at, and you say no (perhaps because this is the first time that you realise that your data has been uploaded) then your data "should have been accessed" and you cannot get your data deleted.

The Department of Health has produced no guidance to indicate when a SCR "should have been accessed".

Nevertheless, if you want to try to get a SCR deleted:

Very few requests to have a SCR deleted will be accepted.


But can I opt-out a a later date, after my SCR has been created ?

YES.

The very same code that is added to prevent the uploading of medical records to the SCR in the first place is used to "blank" or "mask" a "visible" SCR (so called "logically deleted").

Your GP will either add the appropriate read code to your GP-held records or your GP can set your decision to no longer have a Summary Care Record directly via the surgery GP preference flag software.

This will limit those who could clincally access your data, but all your uploaded data will remain intact and archived on the Summary Care Record database forever (i.e. not "physically deleted").


Can I opt back in, at a later date, if I have opted-out ?

YES.

You can opt back in at any time and have a Summary Care Record created.

For example, you can choose to opt-out now and only opt-in once you are certain that your local Accident & Emergency department and your local GP out of hours centre are both accessing and viewing Summary Care Records.


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Access to my Summary Care Record


Will I be asked for my permission before my Summary Care Record is looked at ?

YES.

Well, you should be. This is known as "permission to view".

In certain situations though, known as "Emergency Access", your permission isn't required, as long as whoever is accessing your data states that they feel that it is "in the public interest" not to ask you, or if your consent cannot be provided (if you are in a coma, for example).

You should be asked every time your SCR is accessed.

Be absolutely sure that your "permission to view" status (otherwise known as your SCR consent value) remains permanently at Patient must be asked every time for permission to view their Summary Care Record.

Just one mouse-click by the doctor or nurse looking at your SCR can change this consent status to Patient need not be asked again for permission to view their Summary Care Record.

And then you won't be asked for your permission ever again.


Can I find out who has accessed my uploaded SCR, and when ?

YES.

But it's not easy.

If you agree to have your records uploaded to the Summary Care Record then you will not be informed each and every time anyone accesses your medical record, or informed at regular intervals as to how many times your record has been accessed and by whom. The NHS will not volunteer this information to you. You will have to ask.

The Data Protection Act gives you the right to find out this information. But it will be time consuming, and you will have to do this regularly if you wish to monitor and protect your uploaded data.

Your GP cannot apply on your behalf, not can your GP tell you the number of times that your uploaded data was accessed and by whom.

Your GP is not the data controller for the information uploaded under the Summary Care Record - the HSCIC is.

So you will have to apply to the HSCIC for this information, under a DPA subject access request.

The from that you need to use to make your request is available here.

You will need to provide your name, date of birth, current address and possibly your previous address.

You will need to provide for identity purposes a copy of any two of the following documents:

You will need to send your request to:

Information Governance Department
The Health and Social Care Information Centre
1 Trevelyan Square
Boar Lane
Leeds
LS1 6AE

It may take up to 40 days for your requested information to be received from the HSCIC.


Who has access to my Summary Care Record ?

The Summary Care Record was never, ever, going to be an "emergency care summary" only, even if it was sold as that to get the project going.

It was always going to be a stepping stone to the widespread dissemination of medical information extracted from your GP record, in multiple settings, and to a multitude of people.

Anyone with an NHS smartcard and the appropriate permissions (RBAC roles B0257, B0264, B0370) on the card can access any Summary Care Record.

The NHS Smartcard works just like the chip and pin bankcards.

Summary Care Records can be accessed within GP practices directly (via their system software) or, via a web-based application, anywhere across England where there is an NHSnet connection.

Anyone can have the appropriate RBAC permissions added to their smartcard.

Access to the Summary Care Record is not restricted to doctors and nurses working in Accident & Emergency departments or GP out of hours centres.

Almost any department or ward within a hospital, and any staff member within those areas, can be authorised to access your Summary Care Record, including managers, support workers, helpers and technicians.

Soon, community pharmacies across England will have access.

Soon, outpatient departments in hospitals, and medical rooms in police stations will have access.

In some trusts, hospital pharmacists already have access to uploaded information in the SCR.

Your GP does not authorise them - CCGs, hospital trusts and organisations do.

Your GP cannot stop those activity codes being added to any smartcard.

Your GP is not the data controller for the information uploaded under the Summary Care Record - the HSCIC is.

In order to view a Summary Care Record, the user has to declare that they have a reason to access the record - that is, that they have a "Legitimate Relationship" with the patient.

When your Summary Care Record is accessed, the user is asked to declare the "self-claiming" Legitimate Relationship via a mouse-click. They then have access to your record.

The SCR is supposedly policed by means of "privacy alerts", sent to an organisation's privacy officer when, for example, a self-claiming legitimate relationship is generated. The privacy officer is then supposed to investigate all such alerts to see whether any unwarranted access to the SCR has occurred.

When a legitimate relationship is set up (by a receptionist) for an entire department - for example, when you attend Accident & Emergency - then everyone in that department (who has an appropriate smartcard) can access your record without needing to self-claim. They all then have unrestricted access to your Summary Care Record for the next 6 months. No one needs to declare a "self-claiming" Legitimate Relationship - and that means no privacy alerts.

However, the privacy officer policing your Summary Care Record will not necessarily be your GP.


Will anyone actually look at my Summary Care Record if I attend Accident & Emergency or a GP out of hours centre ?

The probability of your Summary Care Record being accessed, looked at and used within a consultation in any given setting somewhere in England is low at present.

Relatively few organisations across England are actually set up to access and use the Summary Care Record. For example, only about 1 in 3 Accident and Emergency Departments are currently able to access the SCR.

Even if it is available at a given healthcare location, there is no guarantee that the doctor or nurse seeing you will access and use it.

You can ask your GP whether doctors and nurses at your local Accident & Emergency department or GP out of hours centre are actually using the Summary Care Record, and using it reliably.

If not, you may wish to wait until they are before allowing your records to be uploaded or accessible.


In North East Hampshire, only the pharmacy department at Frimley Park Hospital is enabled to view the SCR. The Accident & Emergency department is not currently using the SCR. The local GP out of hours centre, North Hants Urgent Care, does not currently use the SCR. The local ambulance service, SECAMB, is not currently using the SCR.


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Do I need to agree to have a Summary Care Record before I can email my GP or surgery, request a repeat prescription by email or online, book an appointment with my GP online or look at my medical records ?


NO.

You can do all of those without having a Summary Care Record.

Opting out of the SCR will have no effect on you accessing your medical record online (if and when this is offered to you by your GP surgery).

By 2015 all patients should be able to access their GP records electronically if they wish to. Many are able to so right now. And this is not - and will not be - via the SCR.

You can find out about accessing your medical record online in this factsheet. EMIS is one GP software system that already offers this, but the other GP software systems will be doing this as well.

If you are interested in obtaining secure records access then just fill in this form and hand it in to your GP surgery.


In addition, the SCR has absolutely nothing to do with the ability to securely access some aspects of your hospital records online, again only at your explicit request.

These portals include Patient Portal and Patient View.


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Is secondary uses the same as the Summary Care Record ?


NO.

Secondary uses and the Summary Care Record (SCR) are two entirely separate purposes.

For further information about secondary use schemes, please visit www.nhsdatasharing.info

The Summary Care Record is an example of a database that processes your data for primary medical uses only, that is for the provision of direct medical care by healthcare professionals.

the National Audits and risk stratification are examples of schemes that processes your data for secondary uses only, that is for purposes other than your direct medical care by healthcare professionals.

You will still need to opt-out to prevent secondary uses of your GP record, such as risk stratification, even if you have already opted out of the Summary Care Record.

Summary Care Record opt-outs will not prevent secondary uses of your GP record.

Opting out of one does not mean that you have automatically opted-out of the other.

You can have a Summary Care Record but opt-out of secondary uses

You can agree to secondary use extractions but opt-out of the Summary Care Record

Opting out of either secondary use extractions or the SCR, or both, will not in any way affect the medical care that you receive from your GP surgery.


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Is Pharmacy Access the same as the Summary Care Record ?


NO.

Pharmacy Access and the Summary Care Record (SCR) are two entirely separate projects.

For further information about Pharmacy Access, please see www.nhsdatasharing.info

Pharmacy Access is an opt-in scheme that allows a nominated local pharmacy to be able to electronically request medication on your behalf, and allow the pharmacy to view a clearly defined subset of your GP medical record.

Whereas the Summary Care Record makes your GP record information accessible all across England, Pharmacy Access limits this to just one, nominated, pharmacy.

No data is extracted or uploaded in Pharmacy Access, but streamed in real time, on demand.

You have to actively sign up, that is opt-in, to Pharmacy Access, whereas the SCR is an opt-out scheme.

Signing up to Pharmacy Access will in no way affect any existing opt-outs that you may have in force for any or all of the NHS Databases. They will remain in force whether you sign up or not.


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Is the Hampshire Health Record the same as the Summary Care Record ?


NO.

The Hampshire Health Record (HHR) and the Summary Care Record (SCR) are two entirely separate NHS Database projects.

For further information about the Hampshire Health Record, please see www.hampshirehealthrecord.info

The Summary Care Record is an example of a database that processes your data for primary medical uses only, that is for the provision of direct medical care by healthcare professionals.

The Hampshire Health Record is an example of a database that processes your data for both primary and secondary uses.

If you have already opted out of the SCR, you will have the read code 9Ndo in your GP record.

If your GP surgery runs EMIS software as its GP system (as The Oaklands Practice in Yateley does) then opting out of the SCR automatically opts you out of the HHR.

So you do not need to additionally opt out of the HHR, though you can do so if you wish.


But if your surgery does not run EMIS software, and instead runs software such as Vision, Synergy or SystemOne, then the SCR optout will not automatically opt you out of the HHR, and you will need to opt out separately as below.


If in doubt, opt out.

Opting-out of either database, or both, will not in any way affect the medical care that you receive from your GP surgery.


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Is EMIS Web data streaming the same as the Summary Care Record ?


NO.

EMIS Web data streaming and the Summary Care Record (SCR) are two entirely separate data sharing schemes.

For further information about true, interoperable data streaming, please visit www.nhsdatasharing.info, or alternatively have a look at this example factsheet from North East Hampshire and Farnham.

EMIS Web data streaming, sometimes referred to as the MIG, involves information from your GP record being "streamed" in real time and on-demand, meaning that data from your GP record is neither extracted, nor uploaded, nor sent anywhere. The data remains within the surgery database and select organisations, such as your local Accident and Emergency department or GP out-of-hours centre, are only allowed to "view" it.

In contrast with the SCR, your GP surgery remains the data controller and so controls who has access to your information, and can monitor who has accessed your information.

If data streaming is available in your area, then:

Opting out of one will not automatically opt you out of the other.

Opting-out of either scheme, or both, will not in any way affect the medical care that you receive from your GP surgery.


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Opting out of the Summary Care Record


What happens if I don't opt-out ?

If you do nothing, your GP will have to assume that you want a Summary Care Record.

Hopefully, you will just have a basic, core SCR (though that is by no means certain).


I don't wish to have a Summary Care Record - how do I opt-out ?

Opting out of the Summary Care Record is quick and easy.

You do not have to wait until the Summary Care Record goes live in your area to opt-out. You can opt-out right now and your wishes will be recorded by your GP and will ensure that your data is not uploaded if and when the programme does go live for your surgery.

You are under no obligation whatosever to fill in the official opt-out form in order to prevent your data from being uploaded, though you can if you wish.

And when the Summary Care Record does go live in your area and for your surgery, you will not have to opt-out a second time.

Your GP will either add the appropriate read code (9Ndo) to your GP-held records or your GP can set your decision to refuse to have a Summary Care Record directly via the surgery GP software (the so-called "Summary Care Record preference flag").

ANY communication (in person, by letter, email, fax, telephone or text) to your GP stating your wish to opt-out is valid.

I have created a generic opt-out form for use at any GP surgery:

This form will allow you to opt-out of all of the NHS Databases or just the Summary Care Record, as you wish.

Download the generic opt-out form in PDF format

Download the generic opt-out form in DOC format

Download the generic opt-out form in RTF format

You can opt-out in writing:

Do NOT send your opt-out form to your local CCG. The CCG is not the data controller for your medical records, your GP is.

You can opt-out verbally (without an opt-out form or letter) by:

Do NOT ring, email or attend your local CCG to opt-out. The CCG is not the data controller for your medical records, your GP is.

You do not need:


How will opting-out affect my medical care ?

Opting-out will have no effect on the medical care that you receive either from your GP surgery or from anywhere else within the NHS or private sector.

Healthcare professionals will treat you in exactly the same way, whether you have a Summary Care Record or not. Your entitlement to medical care is unaffected.

If medical staff are authorised to access your electronic hospital records (if any exist at a given hospital) then your opt-out of The Summary Care Record will have absolutely no effect on that whatsoever, in any way.

Opting-out will have no effect on your GP surgery and the way it provides services.

It will have absolutely no effect whatsoever on the way your GP records are stored or accessed electronically by your surgery.

It will not affect your prescriptions, vaccinations, screening procedures, investigations, monitoring of chronic conditions or referrals to specialists.

If you opt-out of The Summary Care Record, you can still be referred to a specialist under Choose & Book, your surgery can still manage your prescriptions via the Electronic Prescription Service, you can continue to request your prescriptions online, continue to email your GP or surgery and continue to access your medical records online (if you are offered that facility).

Opting out of The Summary Care Record will have no effect whatsoever on your relationship with your GP surgery.


Will my GP mind if I opt-out ?

NO.

Whether or not you opt-out is immaterial to your GP.

And you certainly don't need your GP's approval or permission to opt-out of the Summary Care Record.


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Other ways to share your GP information


When it comes to allowing healthcare professionals outside of your GP surgery access to information from your GP record, you have options:


You can have any combination of the above, opting out of any particular data sharing schemes, and/or opting in to any that you wish to.

You can find out about all of the NHS Databases, and other NHS data sharing schemes, via www.nhsdatasharing.info


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Contact me


Feel free to send me constructive comments about this site.

Neil.Bhatia@nhs.net

PGP public key: 9651 BDC9 46B5 7768 3B3F AF79 8FE1 DACC FEFA 344F

I will read every comment sent, though please do not be offended if I do not reply to your message.

Privacy policy: I will not sell, trade or otherwise transfer to any third parties your personally identifiable information (your email address or the content of your email)


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Last updated: 21.07.16

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